Sunday, December 14, 2008

Fibromyalgia Awareness!

Fibromyalgia has been recognized by the WHO as a disease since 1992, as mentioned in the list ICO-10, M-79-7, even though it is still questioned by a number of medical professionals. Fibromyalgia is a condition which is characterized by chronic pain and many other symptoms; such as morning myo-acampsia (morning stiffness), sleep disorder, chronic fatigue, and overall fatigue of muscle groups.

Now the fight is happening in Europe, but amongst the entire union. America ignores this disease, doctors treat me like I'm insane, and then they recommend clinical trials that are a) impossible to get into and b) offer no relief to at least half of the participants due to placebo replacements. I can't imagine being on a placebo for six months, with no other meds, as they require. Absolutely absurd!

I encourage anyone aware of this disease to sign the following petition, even if not living in the European union. It's a beginning, somewhere to start, and if Europe is mecca for fibro patients, then it may be time for me to make the trek home. :)

The saddest thing to me is how far behind the US is compared to the rest of the world, yet we consider ourselves to be a leader. We're no leader. We're sheep to the rest of the world. Our current president has been a prime example of a retarded sheep, though I don't want to insult livestock, so I take it back. It's just time for change, and I'm tired of waiting for it, so I'm making it happen for myself.

The website for the European petition is at: http://www.enfa-europe.eu/indexpet.php


The reality of this situation, which affects all the European countries, is that the right of people affected by a chronic disease to have a good quality of life is being ignored. It is therefore called on the medical community, national and European policy makers:
  • To fight against the skepticism around this disease
  • To improve the quality of patients' lives
  • To put in place an individual and interdisciplinary support programmes which allows the patient to stay economically and socially independent, and further avert any form of isolation
  • To ensure in-depth training of this subject in the mandatory courses of medical experts and medical professionals
  • To support and assist awareness programmes that will facilitate early diagnosis and early treatment, as well as access to care at any time.
  • To allocate the adequate aid for scientific research against this pathology
  • To put in place an EU programme on the exchange of best practices on Fibromyalgia


With this petition, I am signing for a European Union in which the rights of 14 million people affected by Fibromyalgia are recognized.

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